Wednesday, October 7, 2009

Last day at Wesley

It's official! We got the okay to leave here in a few hours and FINALLY take our baby home. 151 days, just short of 5 months since Pam first went into the hospital and gave us all the scare of our lives, we are taking a happy and healthy baby Riley home with us. We're just waiting for the hospital to finish up some paperwork and fill her prescriptions (Phenobarbital, Aldactazide, vitamins) and then we'll be packing the car up and rollin' out. We've already got appointments set up to have her immunizations and first pediatrician visit on Monday, the BAER hearing test done next week, meeting with the pulmonary specialist (Dr. Riva) next week, follow-up with Dr. Shah (neurologist) in 4 months, and eye exam in 6 months.

I forgot to mention this in the last post, but she did pass her car seat trial over the weekend. Once we were moved to the family care unit on Monday they told us the only thing keeping Riley from being discharged would be if she didn't gain weight. Given her history, we didn't think it would be a problem - but sure enough she failed to gain anything until 5am this morning, just in time! Still waiting to take the "" survey today too, not sure what that is but its one of the last things on our checklist. Met with Dr. Wadud, partners with Dr. Heflin, and he gave us the all-clear about an hour ago. So exciting!

Here's a view of our "hotel room" the past couple days...

And Grandpa (my dad, Jim) got to hold Riley for his first time. She really enjoyed it!

She has done a good job of sleeping the last couple nights, and been pretty awake during the day - a great schedule to have! Today she has been laying in her crib just looking up at her animals quite a bit, without fussing very much. Hope this "happiness" stays!


  1. Melissa KimmerlingOctober 7, 2009 at 3:16 PM

    Congratulations you guys! It is amazing how far Riley has come, and it is also very evident how much the tow of you have grown as well. We cannot wait until the day comes where we can see the little (big) girl ourselves! Please let us know if you need anything at all.

  2. Joe,

    Great News! What a special dy for you and your family.All of the work,hope and love have paid off!

    Bill Rice

  3. Congratulations! I hope you have time to keep the blog up as I do enjoy hearing about Riley

  4. What a GREAT day! Grandpa and I were so very happy to be a part of it all...bringing Riley home was such a happy experience. She tolerated all the movement, ride home, and 'settled' right in to her 'real' home! What a little trooper! Congrats to 'Mom and Dad' for all the maturity and love you've displayed thru all of this....we love you both very much!
    Grandma Ginni

  5. YAYYYYYYYY!!!! I love that picture of Riley and Grandpa. So adorable. I'm so happy to hear that our little angel is finally home with mommy and daddy. :) I cannot wait to come home and see the little chunk! hope everything goes smoothly her first night at home.
    See you all friday!
    Love you!
    Aunt Jill

  6. Joey and Pam-
    Congrats on finally bringing your baby girl home!! I bet it's wonderful!! It's been so fun reading the blog and seeing her progress and grow up. We are so glad to read the happy ending and see all the beautiful pictures.

    The Landolls

  7. Hi Joe, Pam and Riley

    This is the news everyone has been waiting for. Riley being well enough to be home, where she belongs, with her wonderful parents. Happy for all of you!!!! Good Luck and God Bless.

    Grandpa and Grandma Bearth